10/30/18 - Over 100 Days

I went to Milwaukee to the Children’s Hospital for another check up today. First I went to Labs and they drew my blood. They check all kinds of stuff, but one thing they track closely is my Tachrolimus level. Tachrolimus is an immunosuppressive drug used mainly after organ transplant to lower the risk of organ rejection. They titrate my dosages to the targeted blood levels. After labs were done, I went to The Herma Heart Institute for my heart/general check up. They did an echocardiogram again and then my doctors came and examined me. I got to go down on some medicines today, too!

I gained a little weight and am a little bit longer. I’m still in the skinny side, so they want to see me grow some more and to do that…more to eat. So, we met with my Nutritionalist and also with my Gastrointestinal doctor; the plan is more milk and reassess in December. Possibly change my J tube to a G or GJ tube then, depending on if I’m eating more orally or not, but also depending on my size.

It was a long and busy day, but I handled it well. I’m definitely going to sleep hard tonight though. Did you know I have been home about a month now!? And I’ve had my new donor heart for over 100 days already! Times really flys! -Heath

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