Pediatric Cardiomyopathy

What exactly is wrong with my heart that means I need to have a heart transplant?

 This is an actual picture of my chest on 3/15/18...it shows my broken (poorly functioning) heart. 

This is an actual picture of my chest on 3/15/18...it shows my broken (poorly functioning) heart. 

The cause of my heart condition is unknown. We do not know for sure why or what exactly happened to make my heart function poor. My prenatal care was excellent and all of my prenatal check-ups/ultrasounds went well. My family was absolutely shocked to find out anything at all was wrong with me, let alone something so major. We do know, however that my heart muscle is weak. My heart is not doing it's job 100%. It is not supplying my body with blood (oxygen, etc...) like it should be. After many echocardiograms [an echocardiogram (echo) is a test that uses high frequency sound waves (ultrasound) to make pictures of your heart. The test is also called echocardiography or diagnostic cardiac ultrasound (more...)], my team of doctors have diagnosed me as having some form of Pediatric Cardiomyopathy.

"Pediatric cardiomyopathy is a rare heart condition that affects infants and children. Specifically, cardiomyopathy means disease of the heart muscle (myocardium). Several different types of cardiomyopathy exist and the specific symptoms vary from person to person. In some affected individuals, no symptoms may be present (asymptomatic); in many people, cardiomyopathy is a progressive condition that may result in an impaired ability of the heart to pump blood; fatigue; heart block; irregular heartbeats (tachycardia); and, potentially, heart failure and sudden cardiac death."

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