5/8/18 - Smiles

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After the medicines yesterday, I was wiped out today. I just napped all morning. Mom sang to me and rubbed my head. I peeked at her and smiled. I smile now. Like real smiles. I recognize her face and voice, so when she smiles and sings, it makes me happy and I smile. She says I have a handsome smile. She and my nurse, sat me up and put my smaller Boppy pillow behind me. I sat up a long while like that and snoozed the day away. It was so comfy! I love lounging. Mom laughs when I lay like this. She says I’ll probably be a snorer when I’m older, because I sleep with my mouth wide open (because of the tube). I’m okay with that. At least I don’t drool, ha ha! Yes, the tube is still there, in my mouth... They say it was busy today and they couldn’t schedule me in to try again to move it. So, I guess tomorrow will be the day. I’ll keep you posted. 

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I am up to 45ml of Mom’s milk every few hours now. It’s the most I’ve ever had! I have some exciting news about my diet because of that...no more TPN! I am getting closer to the 65ml of milk every few hours that they want me to have and I don’t need it anymore. This is good news for my liver. It’s a lot of work for my liver when I’m getting TPN. I’ll tell you ,ore about that tomorrow. 

 Talk tomorrow. Please keep me, my family and my someday donor’s family in your prayers tonight. 

Talk tomorrow. Please keep me, my family and my someday donor’s family in your prayers tonight. 

Talk tomorrow. Please keep me, my family and my someday donor’s family in your prayers tonight. 

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