6/17/18 - Father's Day

I was a little distraught looking today, but when you mix Morphine and a deep sleep, you get this type of hair do. Ha ha! I was super zonked out. I slept on my right side, my "bad" side, the majority of the day today in various positions. That is because my Bro-dude was here to take care of me and he doesn't let me get away with much, so I gave in and settled into it. Mom was super excited to see me laying this way. She always worries that I won't be as strong with my left arm because I'm always laying on it when I'm on my left side. So, seeing me punching and rubbing my head and ear with my left hand today made her feel pretty proud of me. 

Not a very flattering picture of me, but I wanted to show you the change we made. No more NJ tube (the one that skipped my tummy and went right into my gut)! I only have the NG (tummy) tube now! So, that means I get fed in my tummy, again. I've been doing good with it, too. With heart babies like me, one of the hardest things we have to deal with is getting fed. Most times, we can't handle the work and it becomes a problem. Luckily, I've been able to handle feeds pretty well so far. Hoping to keep it up! It will make life much easier after my transplant if I do. 

I also wanted to show you this...my hairy shoulders! Everyone says I'm a super hairy baby. The doctors say it's just hormones and will go away, but the men on Mom's side of the family are all big, burly, hairy guys. So, it will probably stay! It's okay, I'll be extra manly. 

Well, back to today's business...Father's Day! My Dad and I had a wonderful day! My girlfriend and I were able to make him a really neat gift last night and he loved it! I was glad! I also wanted to give him an extra special gift by working super hard on my numbers today to give him a great day. He was so proud and relieved that I felt better. The antibiotics change from yesterday really has made a difference and I am starting to feel better. Thank goodness! Do you like the art we made for him? I thought it was pretty cleaver!

Today was the best day I have had in a week and it came just in time. I'm so glad I got to spend the day with my Dad (and Mom). I need to keep getting some rest now. Gotta' get better for when my heart comes! I know it's coming very soon. I can just feel it. Good Night. Please keep me, my family and my someday donor's family in  your thoughts and prayers. Happy Father's Day to all the Bro-dudes out there! Happy Father's Day Dad! I love you a bunch! - Heath 

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