6/8/18 - Grumpy McGrumperstine

Not gonna lie I was feeling pretty grumpy today. My occupational therapist came to see me before noontime. She is the one that helps me to learn to do things that babies my age should learn to do on their own. Right now she’s working to teach me to hold my own hands. She said if I can learn how to do that, it might be easier for me to console myself when I’m mad. So, she set me up like this; put the roll and the beanbag under my arms so I could reach to put my hands together. I can do it myself, but sometimes I just need a little extra help from others. She is pretty happy with me right now. At least I think so? I sit up really well and my right side isn’t an issue anymore. I actually kind of prefer laying on the right side sometimes. Then, after the therapist left, I sat in my boppy pillow and just hung out.

I was pretty grouchy, so it was nice to just feel cozy and snooze. I had a low grade temperature today. Hoping it’s just nothing but me being too hot. I’m a little nervous though. I definitely don’t need any more infections. I’ll keep you guys posted on that. I think that my girlfriend was going to get some cultures going just in case. Probably an antibiotic round in my near future. Ugh, I’m so sick of being sick. It’s for the birds! I did get a nice pick-me-up today, though. Mom read me your messages and a new card from angel Ellen came in the mail for me. It makes me feel so good to hear what people have to say. Thank you for all your love ❤️ Someday, when I’m big, I’ll write you all back and thank you for everything you’ve done for me and for my family. You’re pretty special people! 


This afternoon I sat up in my bouncy chair. I like sitting up a lot. This chair was a gift from the Wollner family. It’s pretty neat. It, of course, bounces, it vibrates and is super comfy to sit in. I just sat and rested. I didn’t do much today. I just visited with my family and my nurses and I took naps. I think it supposed be raining the next few days. Mom says on rainy days people can be just a little bit lazy and that’s OK. So, I think the next few days I might relax. I’ll think about it. 


Not to be all over the place in my post tonight, but I’m working really hard on something lately. I’m trying to learn how to move my head with more control right now. I can move it side to side really good now, but it goes really fast and kind of out of control. So, today I moved my head back-and-forth and frontways-backways a whole bunch and am trying to slow it down with more control. I think with more practice, I’ll be really good at it! Getting stronger is a lot of work. I’ll keep you posted on that, too.


Well, I don’t have a lot to say again tonight. Dad comes tomorrow! I’m gonna need extra sleep so I’m in a happy mood for him. Time to go to bed. Nighty Nite. Please pray that I don’t have a bad infection, that I can keep my breathing tube out and that my heart gift comes soon. I need it too... Love, Heath 😴

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