I’m still not sure I like bath time a whole lot yet, but I don’t mind it. Today, when I took my bath, I sat on the other side of my little tub; the “big boy” side, Mom said. Grandma and Grandpa got me a really nice little baby tub before I was born. It sits inside our big tub at home. On one side of my little tub, it’s like a reclined chair. That’s for little, little babies. I just float up on that side now, because my feet touch and I kick. So, today, I went to the other side where I sit strait up and down like a big kid. It was much more comfortable and I took a pretty long bath today. I like washing my hair the most. Mom rubs my head with soap and then uses a cup to rinse the water out. I like when the water trickles down me. It’s warm and neat to watch. -Heath
We went to work early again today. Mom dressed me up in 12 month clothes for the first time. I’m getting so big guys! The 9 month clothes are too short on my torso, so we had to move up. I liked my outfit and had a good morning, so we took some pictures. I’m a little mischievous when Mom gets the camera out nowdays. If she get’s too close, I’ll grab it from her! I love the clicks, lights and shiny stuff on her phone or the big camera. Here are some pictures. -Heath
Teething toys? Toys? Yes, toys. I do not care to use “teething toys” for teething. They are so much fun to do other stuff with. I shake, throw, kick, pull and all kinds of things on this toy. Today, I just decided it would be fun to use as goggles. I got it stuck on my nose and it wouldn’t fall off. Mom didn’t help me, she just laughed, so I had to figure out how to get it back off. I eventually just grabbed it and it moved. It was interesting looking thru the water, though. I was smiling so hard and kicking excitedly. -Heath
I’m not the best at sitting up alone yet, but with my Bumbo chair, sitting is so easy. I think we need to get a cover for my chair though, because my booty/legs like to stick to it. So, we just put a cloth down and i sit on that so I don’t get stuck. I am almost too big for this chair now anyhow. My chubby legs don’t fit real well. Do you know of any good chairs for little people like me? Right now, I don’t have the core strength to sit alone. I love sitting, though. Hmm… -Heath
I suck my thumb a lot now, I get drooly and sucking on it makes a loud slurpy sound that makes Mom and Dad giggle. -heath
Mom and I went to work at the shop early today. I went in the house with Grandma, while Grandpa and Mom got all the stuff and things done. I think it’s fun to go to Grandma and Grandpa’s house. They like to coo and smooch at me and I give them all the gummy smiles. They have a really clean house. My grandma is so tidy. I usually lay on the living room floor or sit up on the couch. I have my own chair there too, but I like to be by Grandma. We enjoy our time together. I visited a couple hours today before Mom loaded me up and we went for a ride. My first ride in Mommy’s diesel truck! She calls her truck “Ol’ Betty”. She’s the best truck in the whole world, Mom said. I loved seeing out the big windows and the bouncy ride. Betty is louder than our car. She makes grumble sounds from her motor as we go down the road and even though I don’t usually sleep much in the car, I fell right asleep riding in Betty. We were home before I knew it. I can’t wait to go for another ride! -Heath
I chew on everything now! Not gently, like before, but now I NAW on things! hard chewing, biting and all that drool. It’s normal to want too when teething, but I still don’t have any teeth in. The care team isn’t concerned about that at all. Some babies don’t get them until they are about a year old, so I don’t think I’m behind. It’s funny though, because Mom and Dad have thought my teeth were coming in now for months! -Heath
Today was a more of a Mommy and Me day than usual. I like to be pretty independent, but i was in need of some extra attention today and I let her know. So, we snuggled and played. We took this picture and thought it was pretty neat to see how our eyes match. I had a 50/50 chance of getting Blue or Hazel (like Dad’s eyes)…guess I got the baby blues. -Heath
I went to Milwaukee to the Children’s Hospital for another check up today. First I went to Labs and they drew my blood. They check all kinds of stuff, but one thing they track closely is my Tachrolimus level. Tachrolimus is an immunosuppressive drug used mainly after organ transplant to lower the risk of organ rejection. They titrate my dosages to the targeted blood levels. After labs were done, I went to The Herma Heart Institute for my heart/general check up. They did an echocardiogram again and then my doctors came and examined me. I got to go down on some medicines today, too!
I gained a little weight and am a little bit longer. I’m still in the skinny side, so they want to see me grow some more and to do that…more to eat. So, we met with my Nutritionalist and also with my Gastrointestinal doctor; the plan is more milk and reassess in December. Possibly change my J tube to a G or GJ tube then, depending on if I’m eating more orally or not, but also depending on my size.
It was a long and busy day, but I handled it well. I’m definitely going to sleep hard tonight though. Did you know I have been home about a month now!? And I’ve had my new donor heart for over 100 days already! Times really flys! -Heath
I sat in the couch with my Lilly dog and watched Mom fold clothes. I love being up where I can see everything good. The couch is nice and high for that. I have to be very careful so I don’t fall, it I’m never alone. Sometimes, I sit in the corner of the couch like this and just kick my feet and smile. Or I’ll lay up against a pillow and snuggle my blankey. Do you have a comfort item? I wanted to just say that I love my blankeys..and my pony. Whenever I’m a little upset or uncomfortable, I grab onto my blankey and pull it up and rub my face with it. Or I’ll snuggle my pony. I don’t have a favorite blankey. I love them all. I do prefer the ones with the finger and toes holes; I’m sure you know. -Heath
I love snuggles. Let’s talk about that. Now, the secret to the perfect snuggle session is Mommy boobs. You need a Mommy and you rest against her chest. Snuggle right in with your blankey for a nice snooze. It’s the coziest place to snuggle. Your Mommy may get tired arms holding you up, so it’s best to have a pillow handy for support…just in case. You can hear a heart beat, feel warm and extra cooshy snuggly goodness. That’s what I do every day, at least. I love a nice snuggle nap mid day. Waking up from a snuggle nap is a little bit hard and sometimes, you might get growly, but don’t you fret! In a few minutes you will perk up and, if you’re a little boy like me, you will turn into a wild man! Wild men eat Bannanas! About eight bites of the Naners, is what I had today. When I woke up, Mom and Dad were watching the Packers game and eating Macaroni, so I joined in. Naps, naners and touchdowns! Nice day. -Heath
Lazy day. Mom and I did laundry, house stuff, fed our animals and were bums. I practiced sitting. I’m working hard at learning to sit all by myself. It’s really a challenge because I don’t have very strong core muscles yet; with my medical history and all. I’m getting better though! I can sit against Mom’s leg and I don’t fall side to side any more. I sit there pretty well on my own. I have a little trouble when I want to lean forward, though. I can’t get myself back. So, working on it. I also started picking up and holding my rattle toys now. I will find them, hold them and shake them so they make noise. It took me a while to hold on tight enough that the toy didn’t come loose and fall. Got it now though! I was really fussy again today, so I didn’t do much else. I think my teeth are coming in for sure. I’m drooling all over everything, I am rubbing my fingers on my gums as much as possible and I’m fussy, even though I’m usually not. So, teeth… Mom keeps saying to me “I want to see some teefers baby…”. It’s a lot of pressure, growing up. Hopefully they come soon and it’s not too hard on me. Wish me luck, ha! - Heath
I started the day with a fit about eating peaches. Red faced, foot kicking defiance before I even had a second bite…well, I never had the second bite. Mom stopped so I wouldn’t send myself into a tizzy. I just wasn’t interested in food. I ended up eating peas a couple times today, though. I liked them and they didn’t make me gag. Usually, when I eat, I feel urpy afterwards. The thing is…babies like me, with a feeding tube, get a little urpy thru the day normally and the doctors don’t really think twice about it. It makes it hard to learn to eat though, so we are going to be talking with my team Tuesday at my appointment. Maybe I can have an oral medicine like Pepto once in a while to help with the acid reflux feel? I don’t know? It’s not comfortable though. Mom has learned some tricks that we use to help. I don’t sit too strait up and don’t sit leaned too far back p, somewhere in the middle helps me keep the urpy feeling away while eating. I only take tiny bites. I sit a long time afterwards to let my tummy settle. We try to avoid eating during medicine times so I don’t feel icky too. I kept all of my peas down today. I don’t puke ever, it I urp up clear spit and whatever else. It’s yucky…anyways, I was all comfort today. I went to work with Mom in my comfy sweats. It was perfect because today was chilly, but not cold. Then, we ran to town quick and came home. I played and we read a book. We also went for a walk outside with my big doggies. They were well behaved and didn’t bother me. I love watching them. Silly dogs. It was a real nice day. We snuggled before bedtime and now I can’t sleep, so I’m letting Mom know. -Heath
I had the best night’s sleep I have had in a very long time, last night. I usually sleep most of the night, but last night I slept all night. Mom and Dad were so proud of me. I felt really good today because of it, too. God must have known I would need the extra energy today; Mom, too. I had to take an emergency trip to Milwaukee this morning and it took up most of my day. After my morning medicines, my feeding tube pump kept alarming. Usually, Mom can stop the machine and just run some club soda thru and it will work again. Today, though, my J tube was clogged really bad and we couldn’t fix it. It was a big deal because I get my medicines thru that tube and I also couldn’t be fed my formula (that also goes thru the tube). So, we got down to the CHW and the Radiology department pulled it out and replaced it. So, it was a little bit of a scary day. That was our first experience with it being clogged that bad. I did make a couple new girlfriends today, so that was nice. We are going to change a couple little things to try to keep this tube working until my evaluation in December for a different tube. I am home and feel fine; all good. It was a tiring day though. Good night. -Heath
My feet are the coolest things ever! Okay, I know everybody has them, but I think mine are very interesting. I can lift them and kick them. I just stare at them and do things that make me smile. Like, how did I even get this foot to go up? I didn’t grab it and pull it with my hand? So, how’d it go up? So interesting.
Then, I layed on the couch and Mom clipped my nails. That’s another thing that makes me confused? Where do nails come from? Why do they need trimmed every week? We trim my nails at least that often, because I like to scratch stuff. I scratch Mom and Dad, myself and my toys…my bed sheet. I like the sound scratching makes. Cccrrrrrhhhh….ha, ha! -Heath
Today was a day of sunshine naps, play time and running errands with Mom. We had lots to do! We went to work, we saw Grandpa a minute, we went to town and did all the stuff and things! We stopped and shipped some things we no longer need to some friends who lost their home in the hurricane, too. Mom said it’s good to be kind to others. Friends and family are very important. I wonder who my friends will be when I’m older? Right now, I have my doggy (the little one that’s safe for me to be around until I’m stronger). She’s my friend. We lay in the sun together and she follows me when Mom is toting me around the house. I think she wants to make sure mom doesn’t take me away too far. All of our animals here are very curious about me. Mom hasn’t taken me too close to the horses yet, because she doesn’t want me near the germs just yet, but they see me and I think they like me. Or they think I’m food? Horses like to eat. And the cows look at me the same way. Our doggies, they all want to get close and sniff me or try to lick me. I see them every day, but they don’t get too close yet either. I’m just little and labs are spunky. I think I’ll really love all of the animals when I’m bigger and stronger, though. They are one of the things that I make sounds about. I Babel when I see them playing or even just moving. I don’t coo or make consistent sounds yet, but I growl and grunt. It’s cute I suppose. I’m pretty cute in general. I was real cute today when mom pulled my pants off to change my diaper…surprised her! He, he, he. Anyhow, I’m doing good at home still. It’s all a little scary yet, but we are getting adjusted and taking things a day at a time. Well, talk tomorrow… -Heath
I turned eight months old today. We can hardly believe I’m already this old. Times has flown by. The days at the hospital all seemed to drag, but the time as a whole, really went quickly. Mom and Dad still remember everything clearly…every single day of my life. There were so many times that they were afraid I wouldn’t get to today, but look at me now guys! I’m glad I won’t remember though. I’m glad that I get to live this life normally. This is my normal. I will never know any different than being a Heart transplantee. That’s good, too! I’m home and feel like a normal baby. I am so much stronger and doing well. I do all of the normal baby things. Even eating has been getting better. My family and I definitely make every single day special. I’m here. I’m happy. Today, I did all Heath things. I spent time with Grandpa and Mom took me to town (with my mask on) and I got to see lots of new things. I napped in the sunshine on the couch. I ate peaches and peas. We played, read books and I got a special delivery too…a pumpkin! I don’t know if you remember, but a while back, we said my cousins were growing me one. Well, it’s home and this weekend we are going to carve it! Mom says it’s so big that we will get the goo out and put me inside it for a picture! Well, that’s the plan at least. I’m excited. Thank you guys for the thoughts and prayers and support and love thru my journey so far. I truly believe that you helped me thru some of my hardest days. I’m so thankful, my family is so thankful, that I am able to celebrate eight months of life today. Never take a second for granted. Love, Heath.
I love my new “normal” on Sundays. Sunday’s at home are so much better than sundays in a hospital. A day filled with snuggles, play time, football sounds and the house smells like cinnamon and pumpkins right now. The sunshine shines thru the windows and makes my play at feel so comfy that sometimes I forget to play and snooze in the warm sun instead. Sometimes, when I’m playing a long time, Mom will pull my mat along to follow the sun so it still hits me. She says that the sunlight special and will help me feel good. By the end of the day, my mat doesn’t reach it anymore, but I still have the natural light. I think it’s one of my many favorite things. I love the sun, seeing the same people every day, unlimited snuggles, bedtime stories and seeing the animals. My family has been amazing and I’m so excited to begin meeting more of them as I get bigger. We are taking it safe and slow for now; meeting people. Today I ate a whole bunch of peaches and bananas and sweet potatoes. I was in the mood and I think that, now that I’m feeling better without withdrawals, I can feel more comfortable eating. I ate about five times today and had six or more bites of food each time. It was a big deal! Better and better every day. Speaking of better every day…I am getting so much smarter and stronger! I grab and hold and pull and push my feet, my toys and anything I can get my hands on. It’s really fun! -Heath
Just had a nice day. Not much to write. So, here are some cute pictures of me and my Pumpkin from Grandma. -Heath
I tried something miraculous today; peaches! They are my most favorite food, now. I actually ate them pretty well, too. Probably my best eating “session” yet! I don’t really swallow with my lips closed yet, but I am using my tongue a lot more and that is a big step forward for me. I actually just started that (using my tongue more). I stick it out and lick the spoon and my lips. It’s funny. I know, because Mom and Dad laugh when I do it. I practiced my sitting up too! I’m getting stronger and stronger every day. - Heath