My daughter was born with the same thing. We are from Baraboo. She had her first heart transplant when she was 2. She is 29 now. She had her 2nd heart Dec of 2017. You are in my prayers. Your Dr. delivered my last baby. The same Drs. at Milwaukee were my daughters Dr. Please if you have any questions from a mom who has been through this twice please feel free to ask. I am a very private person also. But there is so much to know that Doctors Social Workers Nurses dont tell you. Prayers sent. -Cherea M.